Comments on: And What Do I Tell Her Now … http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/ Wed, 07 Jan 2009 05:04:36 +0000 http://wordpress.org/?v=2.6.5 By: All Blogged Up: A Moof’s Tale / The Upshot http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-39843 All Blogged Up: A Moof’s Tale / The Upshot Fri, 06 Jul 2007 00:32:18 +0000 http://moof.blogsplot.net/?p=166#comment-39843 [...] in May of 2006, I wrote about my daughter, and her struggle with Crohn’s Disease. Unfortunately, the last year has not been kind to her [...] [...] in May of 2006, I wrote about my daughter, and her struggle with Crohn’s Disease. Unfortunately, the last year has not been kind to her [...]

]]> By: Kim http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2419 Kim Fri, 02 Jun 2006 05:58:09 +0000 http://moof.blogsplot.net/?p=166#comment-2419 Boy, this post sure hit home. Even when they are adults we can't make everything okay. But her personality sure shows in her not only living her life but in striving for her college degree. She's a strong woman. And the stories of the ER make me so angry I could scream. Crohn's doesn't cause pain? Where the hell did they go to medical school? Boy, this post sure hit home.

Even when they are adults we can’t make everything okay. But her personality sure shows in her not only living her life but in striving for her college degree.

She’s a strong woman.

And the stories of the ER make me so angry I could scream.

Crohn’s doesn’t cause pain? Where the hell did they go to medical school?

]]> By: Moof http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2345 Moof Wed, 31 May 2006 02:09:56 +0000 http://moof.blogsplot.net/?p=166#comment-2345 Hannah! Thank you for dropping in and leaving a comment. I read it with a bit of consternation though ... I was in exactly the same position just over a year ago. *comfort* The waiting is always the worst, Hannah. Knowing, even when the news may not be what we expect, is easier, somehow. Let us be there for you - however it turns out. Please - let us know! Have gone to your very interesting blog, and blogrolled you. --- Marysienka, thank you for visiting me and leaving a message. I'm so sorry to hear about the Crohn's ... that's got to be very challenging for you. Thank you for the kind words. I know that my daughter will take them to heart. --- Dr. Hebert ... it's so good to "see" you! You know, your comment left me feeling at peace ... although it wasn't a "peaceful comment." It was the idea that someone out there <em>does</em> understand, and <em>cares</em> ... you know, sometimes, not a lot more than that is needed ... Thank you, my friend! --- Dena ... hang in there Honey. Could be that something else is wrong in that department, you know. It may not be related to the Crohn's. *comfort* --- Gimpy Mumpy, thanks so much for visiting me, and telling me a bit about your journey ... and for the wonderful advice you left for us. It sounds as if your own journey is quite a challenge. I have a feeling that you have a lot of wisdom to share. :o) Hannah! Thank you for dropping in and leaving a comment. I read it with a bit of consternation though … I was in exactly the same position just over a year ago. *comfort* The waiting is always the worst, Hannah. Knowing, even when the news may not be what we expect, is easier, somehow. Let us be there for you - however it turns out. Please - let us know!

Have gone to your very interesting blog, and blogrolled you.

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Marysienka, thank you for visiting me and leaving a message. I’m so sorry to hear about the Crohn’s … that’s got to be very challenging for you. Thank you for the kind words. I know that my daughter will take them to heart.

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Dr. Hebert … it’s so good to “see” you! You know, your comment left me feeling at peace … although it wasn’t a “peaceful comment.” It was the idea that someone out there does understand, and cares … you know, sometimes, not a lot more than that is needed …

Thank you, my friend!

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Dena … hang in there Honey. Could be that something else is wrong in that department, you know. It may not be related to the Crohn’s. *comfort*

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Gimpy Mumpy, thanks so much for visiting me, and telling me a bit about your journey … and for the wonderful advice you left for us. It sounds as if your own journey is quite a challenge. I have a feeling that you have a lot of wisdom to share. :o)

]]> By: Gimpy Mumpy http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2336 Gimpy Mumpy Tue, 30 May 2006 23:33:48 +0000 http://moof.blogsplot.net/?p=166#comment-2336 Hello Moof, I've just stumbled upon your wonderful blog through GrandRounds. As someone who became disabled after a fall in my late 20's and continue to have chronic pain in my early 30's I would like to pass along to Baboof to hang in there! Most docs are too busy, some are too self-absorbed and a there are those who should not be aloud to practice medicine. Unfortunately even the good docs tend to have a biased belief that when a Young Female with Chronic Pain walks in that they must be imagining their symptoms and/or seeking drugs. I've been through the being-treated-like-a-junkie phase and it hurt deeply. My best advice is to stay current on your condition(s), get copies of and keep organized medical records, and bring someone in with you to EVERY appointment. Lastly, try to keep on smiling and laughing. Do not let them take that away from you. All the best, Gimpy Mumpy Hello Moof, I’ve just stumbled upon your wonderful blog through GrandRounds.

As someone who became disabled after a fall in my late 20’s and continue to have chronic pain in my early 30’s I would like to pass along to Baboof to hang in there!
Most docs are too busy, some are too self-absorbed and a there are those who should not be aloud to practice medicine. Unfortunately even the good docs tend to have a biased belief that when a Young Female with Chronic Pain walks in that they must be imagining their symptoms and/or seeking drugs. I’ve been through the being-treated-like-a-junkie phase and it hurt deeply.
My best advice is to stay current on your condition(s), get copies of and keep organized medical records, and bring someone in with you to EVERY appointment. Lastly, try to keep on smiling and laughing. Do not let them take that away from you.
All the best,
Gimpy Mumpy

]]> By: BaBoof http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2329 BaBoof Tue, 30 May 2006 20:43:18 +0000 http://moof.blogsplot.net/?p=166#comment-2329 Wow Dr. Mchebert! That is EXACTLY what I'm dealing with........ Like my Mother says... They think I'm a "seeker". Now I think I've developed fistulas...(how ever it's spelled). I don't know how any Dr.'s could think that a persons whose own body is building, or chewing rather, holes and forming tunnels to other organs is NOT painful! All I know is that now, and never before, have I been in so much pain...more so during menstruation then ever...and the bleeding never stops. I load up on Midol because that is all I can get anyone to let me take. I honestly, seriously hope and pray this Crohn's stuff has not riddled holes in my reproductive system! Baboof Wow Dr. Mchebert! That is EXACTLY what I’m dealing with…….. Like my Mother says… They think I’m a “seeker”.

Now I think I’ve developed fistulas…(how ever it’s spelled). I don’t know how any Dr.’s could think that a persons whose own body is building, or chewing rather, holes and forming tunnels to other organs is NOT painful! All I know is that now, and never before, have I been in so much pain…more so during menstruation then ever…and the bleeding never stops. I load up on Midol because that is all I can get anyone to let me take. I honestly, seriously hope and pray this Crohn’s stuff has not riddled holes in my reproductive system!

Baboof

]]> By: mchebert http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2311 mchebert Tue, 30 May 2006 13:00:17 +0000 http://moof.blogsplot.net/?p=166#comment-2311 When I was in medical school one of my very first patients had Crohn's. I spent the better part of an hour listening to that woman tell me over and over how much pain she was in. Then I went out to present the case to my attending. Without having examined the patient, and after listening to me for about 2 minutes, he said, "Crohn's doesn't cause pain. She just wants narcotics." This guy was a gastroenterologist. I don't know what you do about people who refuse to listen to patients. I meet these kinds of doctors all the time, and all I can say is that it puts a real barrier between me and them. I just can't respect them, and I don't. It makes it hard to get along with my colleagues sometimes. When I was in medical school one of my very first patients had Crohn’s. I spent the better part of an hour listening to that woman tell me over and over how much pain she was in. Then I went out to present the case to my attending. Without having examined the patient, and after listening to me for about 2 minutes, he said, “Crohn’s doesn’t cause pain. She just wants narcotics.”

This guy was a gastroenterologist.

I don’t know what you do about people who refuse to listen to patients. I meet these kinds of doctors all the time, and all I can say is that it puts a real barrier between me and them. I just can’t respect them, and I don’t. It makes it hard to get along with my colleagues sometimes.

]]> By: Marysienka http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2272 Marysienka Mon, 29 May 2006 16:29:54 +0000 http://moof.blogsplot.net/?p=166#comment-2272 I just found your blog, and the first entry I read (this one) really touched me. Not because I am a mother and I can totally relate. In fact, it made me see how a mom reacts when her child gets hurt. I know my own mother went through the same emotions with her daughters, especially me, when I was diagnosed with Crohn's at the age of 10. In those 10 years of living with this disease, both my parents have gone through a rollercoaster of emotions. Sometimes, just knowing they are there, even if they are silent, is enough to ease our pain for a moment. The first few years are the worst, but your daugther will gain control of the situation. She's lucky to have you, I know it. Best of luck to her, I just found your blog, and the first entry I read (this one) really touched me. Not because I am a mother and I can totally relate. In fact, it made me see how a mom reacts when her child gets hurt. I know my own mother went through the same emotions with her daughters, especially me, when I was diagnosed with Crohn’s at the age of 10. In those 10 years of living with this disease, both my parents have gone through a rollercoaster of emotions. Sometimes, just knowing they are there, even if they are silent, is enough to ease our pain for a moment. The first few years are the worst, but your daugther will gain control of the situation. She’s lucky to have you, I know it.
Best of luck to her,

]]> By: Hannah http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2269 Hannah Mon, 29 May 2006 15:20:32 +0000 http://moof.blogsplot.net/?p=166#comment-2269 P.S. Found you via Flea and am linking to you. Great blog! P.S. Found you via Flea and am linking to you. Great blog!

]]> By: Hannah http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2268 Hannah Mon, 29 May 2006 15:19:21 +0000 http://moof.blogsplot.net/?p=166#comment-2268 I have nothing wise to add. I sit here this weekend studying for an exam the week before finals in my nursing program...AND am frustrated that no one got back to me before 5 p.m. Friday with news on 3 ultrasounds. I haven't blogged it yet, but my ARNP found a pelvic mass and says I will likely need a CT scan, probably surgery. The frustration that I am sitting all weekend, helpless as the result sit read somewhere, but not one called the ARNP to call me. It's a vulnerable feeling to not feel "helped." I am glad your Boof has YOU. I have nothing wise to add. I sit here this weekend studying for an exam the week before finals in my nursing program…AND am frustrated that no one got back to me before 5 p.m. Friday with news on 3 ultrasounds. I haven’t blogged it yet, but my ARNP found a pelvic mass and says I will likely need a CT scan, probably surgery. The frustration that I am sitting all weekend, helpless as the result sit read somewhere, but not one called the ARNP to call me. It’s a vulnerable feeling to not feel “helped.” I am glad your Boof has YOU.

]]> By: Moof http://moof.blogsplot.net/2006/05/24/and-what-do-i-tell-her-now/#comment-2231 Moof Sun, 28 May 2006 04:33:00 +0000 http://moof.blogsplot.net/?p=166#comment-2231 Pk ... duct tape and bungee cords! Sounds great! I know that duct tape will fix <em>anything!</em> ;o) -- DP ... thank you for stopping in and leaving a comment, and for the encouragement. How old is your little daughter? -- Emmy, thank you for visiting my blog and leaving a comment. Please don't be a stranger. I'm sorry that you have been through the difficulties that you mention. I sincerely hope that, the "nex time," they are able to find what is <em>causing</em> the pain, and take care of the problem itself. *comfort* Pk … duct tape and bungee cords! Sounds great! I know that duct tape will fix anything! ;o)

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DP … thank you for stopping in and leaving a comment, and for the encouragement. How old is your little daughter?

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Emmy, thank you for visiting my blog and leaving a comment. Please don’t be a stranger.

I’m sorry that you have been through the difficulties that you mention. I sincerely hope that, the “nex time,” they are able to find what is causing the pain, and take care of the problem itself. *comfort*

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