Comments on: And What Do I Tell Her Now …

By: wila

wila — Wed, 16 Dec 2009 19:06:25 +0000

check out the People’s Pharmacy… I seem to remember something about eating cocoanut to ease the systoms… its a radio program but they also put all info on line… this is a really great show that incorporates natural and conventional medical advice so they show many approaches to problems… hope this helps! wila

By: Crohn's Disese

Crohn's Disese — Wed, 08 Jul 2009 11:12:38 +0000

I’m very afraid about crohn’s disease. I have some symtoms in abdominal pain, often in the lower right area, and diarrhea. Should I go to see the doctor? Please help.

By: All Blogged Up: A Moof’s Tale / The Upshot

All Blogged Up: A Moof’s Tale / The Upshot — Fri, 06 Jul 2007 00:32:18 +0000

[...] in May of 2006, I wrote about my daughter, and her struggle with Crohn’s Disease. Unfortunately, the last year has not been kind to her [...]

By: Kim

Kim — Fri, 02 Jun 2006 05:58:09 +0000

Boy, this post sure hit home.

Even when they are adults we can’t make everything okay. But her personality sure shows in her not only living her life but in striving for her college degree.

She’s a strong woman.

And the stories of the ER make me so angry I could scream.

Crohn’s doesn’t cause pain? Where the hell did they go to medical school?

By: Moof

Moof — Wed, 31 May 2006 02:09:56 +0000

Hannah! Thank you for dropping in and leaving a comment. I read it with a bit of consternation though … I was in exactly the same position just over a year ago. *comfort* The waiting is always the worst, Hannah. Knowing, even when the news may not be what we expect, is easier, somehow. Let us be there for you – however it turns out. Please – let us know!

Have gone to your very interesting blog, and blogrolled you.

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Marysienka, thank you for visiting me and leaving a message. I’m so sorry to hear about the Crohn’s … that’s got to be very challenging for you. Thank you for the kind words. I know that my daughter will take them to heart.

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Dr. Hebert … it’s so good to “see” you! You know, your comment left me feeling at peace … although it wasn’t a “peaceful comment.” It was the idea that someone out there does understand, and cares … you know, sometimes, not a lot more than that is needed …

Thank you, my friend!

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Dena … hang in there Honey. Could be that something else is wrong in that department, you know. It may not be related to the Crohn’s. *comfort*

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Gimpy Mumpy, thanks so much for visiting me, and telling me a bit about your journey … and for the wonderful advice you left for us. It sounds as if your own journey is quite a challenge. I have a feeling that you have a lot of wisdom to share. :o)

By: Gimpy Mumpy

Gimpy Mumpy — Tue, 30 May 2006 23:33:48 +0000

Hello Moof, I’ve just stumbled upon your wonderful blog through GrandRounds.

As someone who became disabled after a fall in my late 20’s and continue to have chronic pain in my early 30’s I would like to pass along to Baboof to hang in there!
Most docs are too busy, some are too self-absorbed and a there are those who should not be aloud to practice medicine. Unfortunately even the good docs tend to have a biased belief that when a Young Female with Chronic Pain walks in that they must be imagining their symptoms and/or seeking drugs. I’ve been through the being-treated-like-a-junkie phase and it hurt deeply.
My best advice is to stay current on your condition(s), get copies of and keep organized medical records, and bring someone in with you to EVERY appointment. Lastly, try to keep on smiling and laughing. Do not let them take that away from you.
All the best,
Gimpy Mumpy

By: BaBoof

BaBoof — Tue, 30 May 2006 20:43:18 +0000

Wow Dr. Mchebert! That is EXACTLY what I’m dealing with…….. Like my Mother says… They think I’m a “seeker”.

Now I think I’ve developed fistulas…(how ever it’s spelled). I don’t know how any Dr.’s could think that a persons whose own body is building, or chewing rather, holes and forming tunnels to other organs is NOT painful! All I know is that now, and never before, have I been in so much pain…more so during menstruation then ever…and the bleeding never stops. I load up on Midol because that is all I can get anyone to let me take. I honestly, seriously hope and pray this Crohn’s stuff has not riddled holes in my reproductive system!

Baboof

By: mchebert

mchebert — Tue, 30 May 2006 13:00:17 +0000

When I was in medical school one of my very first patients had Crohn’s. I spent the better part of an hour listening to that woman tell me over and over how much pain she was in. Then I went out to present the case to my attending. Without having examined the patient, and after listening to me for about 2 minutes, he said, “Crohn’s doesn’t cause pain. She just wants narcotics.”

This guy was a gastroenterologist.

I don’t know what you do about people who refuse to listen to patients. I meet these kinds of doctors all the time, and all I can say is that it puts a real barrier between me and them. I just can’t respect them, and I don’t. It makes it hard to get along with my colleagues sometimes.

By: Marysienka

Marysienka — Mon, 29 May 2006 16:29:54 +0000

I just found your blog, and the first entry I read (this one) really touched me. Not because I am a mother and I can totally relate. In fact, it made me see how a mom reacts when her child gets hurt. I know my own mother went through the same emotions with her daughters, especially me, when I was diagnosed with Crohn’s at the age of 10. In those 10 years of living with this disease, both my parents have gone through a rollercoaster of emotions. Sometimes, just knowing they are there, even if they are silent, is enough to ease our pain for a moment. The first few years are the worst, but your daugther will gain control of the situation. She’s lucky to have you, I know it.
Best of luck to her,

By: Hannah

Hannah — Mon, 29 May 2006 15:20:32 +0000

P.S. Found you via Flea and am linking to you. Great blog!